Texas A&M Health and BurstIQ, a leader in advanced data management, today announced a partnership to leverage LifeGraph®, a graph-powered, end-to-end data management platform, to transform clinical research. This collaboration aims to enhance patient and researcher interactions while ensuring the highest standards of patient privacy and data rights.
LifeGraph is set to revolutionize Texas A&M Health’s PROVENANCE clinicogenomics registry programs by empowering all data stakeholders, including researchers, institutional stewards, and patients. Through privacy-preserving techniques, dynamic consent, and federated learning approaches, LifeGraph helps Texas A&M Health mitigate the risks and challenges associated with relying solely on deidentification methods for genomic data governance. This innovative solution ensures a secure and efficient data management system for all involved parties.
Texas A&M Health is leveraging LifeGraph to create a comprehensive patient profile – a LifeGraph – that combines patient and population medical data with genomics, social determinants of health, real-world data, ambient data, and knowledge bases such as ClinGen and PharmGKB. This holistic view will empower researchers with the real-world, contextualized data they need to discover new insights and build computational models for superior clinical decision support. The next-gen collaborative research network will provide external researchers and patients alike with the ability to access research studies that benefit them and make more informed decisions about their participation in genomic research. Ultimately, **Texas A&M Health** aims to strengthen patient-researcher agency in data governance, increase access and trust for underrepresented individuals, accelerate the scale of clinicogenomic research, and enhance the implementation of precision medicine tools, thereby improving patient outcomes and offering a hopeful future for healthcare.
“LifeGraph provides a unique foundation for a modern, data-driven, and scalable approach to collaborative genomics research,” said Rick Silva, PhD, Executive Director of Clinical, Translational, and Industry Collaborations at Texas A&M Health’s Institute of Biosciences and Technology, Center for Precision and Genomic Medicine. “By securely linking clinical and non-clinical data in knowledge graphs and allowing patients to make informed decisions about participating in clinical research across time and the patient journey, we can better support patients, institutional data stewards, and enable researchers to derive more value from data. Now we can harness the power of real-world data to transform clinicogenomics research.”
“We are incredibly excited to partner with Texas A&M Health on this revolutionary initiative,” expressed Frank Ricotta, CEO at BurstIQ. “LifeGraph’s secure handling of sensitive healthcare data opens up new possibilities for transforming research and positively impacting the lives of patients.”
This project will also explore the long-term goal of developing a secure system for sharing this data with external collaborators, ultimately aiming to improve healthcare for all.
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